Friday, August 12, 2011

On this day in 2010...

So, I saw this thing on Facebook today that said "On this day in 2010". It showed the status I posted that day... August 12, 2010 @ 9:04pm. Dr. Bedi in the NICU at Clear Lake had sat me down earlier that day and told me that Analeigh was going to need a tracheostomy. The alternative? Possibly death from respiratory failure. He answered all my questions, the nurses handed me some literature and I somehow managed to hold it together... until I got to my car. Then, I lost it. 
I left that hospital feeling completely discouraged... and cheated. We weren't going to get those belly laughs or baby babbles that I had so been longing to hear. In fact, up to that point, we'd never even seen her smile. She was so hungry for air and fighting so hard that she just couldn't. I knew it was the right thing to do for her, but that still didn't make it feel any less like the end of the world. I cried the whole way home and more still while I was choking out the words to my Michael and my parents. 
It was the biggest thing in our lives at that time. I worried about having to learn how to change the trach, clean it, suction it, etc. I was so overwhelmed. Looking back now, well... that was the easy part. I didn't think then that it could be any worse... and then it was. I'm grateful that we did at least get a few months of her smiles... and the baby babbles we were told we wouldn't get, well... we got those too. No laughs but those smiles made it not matter.
Oh how I wish we could go back! I wouldn't care if we had that version of Analeigh for the rest of her life because now I know.. it does get worse! I thought then that it was a matter of counting down a year, maybe two and then she'd be just like a normal child with stronger lungs. I never imagined a parent's worst nightmare could ever become reality for us. Well, now I know. I wish all the time that I hadn't taken those few precious months for granted like I know I did.
 Below is my status update for that day and the comments everyone left me. The tracheostomy was actually done on the 18th.. 6 days after this post.
"Spoke to the dr today. Analeigh was seen by 3 specialists and they all agree that the only way she will get any better is to have a trachiostomy. A trach will be inserted in her throat to allow her to breathe. It will go through her vocal chords so she will not be able to talk. She'll have it probably until she's 5 yrs old."

  • Lisa Quick likes this.
    • Loyce Schofield Shipman omg, if u need ne thing... and i mean it, u just let me kno. my father n law had 1 and he cud talk, just she or u will have to cover the hole up. Its hard and i kno it. I feel deeply 4 u!
      August 12, 2010 at 9:08pm ·
    • Thea M. Joy
      Obviosly, this is hard news for us because it will mean having to learn how to change the trach tube, clean the area and suction her. Swimming will be out of the question and we'll have to learn sign language most likely. No first words or ...See More
      August 12, 2010 at 9:09pm ·
    • Thea M. Joy Thanks Loyce... Yeah covering it when she gets older is an option but they did suggest sign language.
      August 12, 2010 at 9:12pm ·
    • Jessica Mcdonald my prayers are with you and by gods will she will be healed all things are possible through Jesus Christ.... if you need anything give me a call
      August 12, 2010 at 9:16pm ·
    • Tracey McAteer Teel Oh Thea, I am sooo sorry to hear this news. I know you two are struggling with this, and I know words don't mean much right now, but I will add you to the prayer list at church. I can not imagine how hard this was for you to hear. (((((Thea/Michael)))))
      August 12, 2010 at 9:16pm ·
    • Thea M. Joy Thanks guys. It is very hard and still sinking in.
      August 12, 2010 at 9:19pm ·
    • Jaki Frizzell Oh wow. When its removed will she be able to speak then?
      August 12, 2010 at 9:21pm ·
    • Erin Evans Akey Thea I am so sorry......you guys just keep praying and hang in there!
      August 12, 2010 at 9:31pm ·
    • Dezaraye Wertman Thea ... I wish I could do something. I will pray and I've sent out prayer requests on your behalf. I love you and I'm here for you if you need to talk. You know my number.
      August 12, 2010 at 9:38pm ·
    • Stacy Breland I'm sorry for your news, I will keep praying...it's never too late for God's miracles to keep flowing for this little angel of yours...she alone is God's own little miracle..I could not even imagine the hurt u are going through... May God pour his blessings out for u!!..we all love u, and if u need anyone to talk to..I'm here for u
      August 12, 2010 at 9:55pm ·
    • Thea M. Joy Thanks everyone. Jacki, she'll be able to talk once its out.
      August 12, 2010 at 10:14pm ·
    • Jaki Frizzell Then maybe its a blessing in disguise, she'll know sign language and you won't loose her first laugh or word, you'll just have to wait a little longer. The sign language gives her astep ahead of others. I know your tired of waiting and bad news, but you have her.. And there's a good chance this will work so you can bring he home. Stay strong and keep praying.
      August 12, 2010 at 10:18pm ·
    • Thea M. Joy Thanks... I'm hanging in there even if only by a thread.
      August 12, 2010 at 10:29pm ·
    • Jaki Frizzell Hey a thread counts, tie a not in it and swing from it if you get a little bored! All jokes aside your in my prayers as well.
      August 12, 2010 at 10:31pm ·
    • Thea M. Joy Lol, thanks.
      August 12, 2010 at 10:34pm ·
    • Lacy Kay Zachary all I can say is (((((((((((((((HUGS)))))))​))))))))
      August 12, 2010 at 10:38pm ·
    • Thea M. Joy Thanks girl.
      August 12, 2010 at 10:52pm ·
    • Nancy Joy I love you Thea, I love you Michael !!!
      August 12, 2010 at 11:30pm ·
    • Thea M. Joy We love you too.
      August 13, 2010 at 8:55am ·
    • Pam Gigout Buras Thea, I'm so sorry to hear this news and I'll be praying for you guys. Remember, when we are weak God is our strength!
      August 13, 2010 at 9:11am ·
    • Thea M. Joy Thank you.
      August 13, 2010 at 12:10pm ·

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